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Hole in Nose. PLEASE, please help

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About This Thread
Replies: 7
Last Post: Apr 6 2008 2:50 AM
Last Post By: mimiwang33
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JeanaBeMe
Hole in Nose. PLEASE, please help
Posted: Mar 30, 2008

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Please help! I’m past the “frustration” phase, have graduated the “scared” phase & am quickly moving into the “frustrated, scared, & pissed off“ phrase. I’ll explain as much detail as I can in hopes of a chance of getting your advice.

I’m a 38 yr old female w/Idiopathic Cardiomyophthy diagnosed when I was 18. With a diffibulator (PCD) that was implanted when I was 23. I can go into V-Tach or V-Fib at any given moment. I also have Gideon’s disease in my kidney, I don’t retain minerals like Potassium & Magnesium. I take 10 mg of Amiloride 1X a day, 120 mg of Sotalol 2 X a day, 800 mg of Magnesium Oxide 2 X a day, 10/650 of Hydrocodone every 4-6 hours for the pain in my face, & 800 mg of Ibuprofen every 6 hours for the pain as well.

Here goes. Bout 3 weeks ago I noticed sores inside my nose. 1 on 1 side of my nostril & another 1 in the other nostril. (I’m not sure what the medical term is but they’re on that center piece in the nose that separates the nostrils.) Their back to back. In the same spot, just on the other side. I was using a q-tip to apply Neosporin a few times a day. A week into doing this I almost passed out when the q-tip went straight through to the other side. I called the Dr & was given an appointment a week later. In the mean time I noticed that the hole was getting bigger. (I’m using a small flashlight to see up there.) I also see pockets of puss in there that when I gently pull up on the tip of my nose to look in there puss comes out of them w/that very slight amount of pressure.

I went to my appointment March 20. I told him what was going on. He asked how my throat felt. I told him that as of that morning my throat was extremely raw. He looked in my nose, but never did look at my throat. Immediately after looking in my nose he asked me if I did Cocaine. I kind of laughed at him & said, “Considering my heart condition don’t you think I would be dead if I had ever used cocaine?” He didn’t say anything just proceeded to write prescriptions for a Z-pac & for Bactroban. He told me not to use Neosporin, that it was probably making it worse. I asked about the hole & he said people use cocaine & walk around everyday w/holes in their noses & its no big deal. That if down the road it bothering me we could look into surgery.

I left his office feeling my problem was being brushed off as damage from cocaine use.

5 days later I noticed that the hole was getting bigger & I had taken the last dose of antibiotics that morning. I called a local service, “Ask-A-Nurse”. I explained everything to the nurse & she told me I needed to call my Dr & have him refer me to a ENT Dr.

15 minutes later she called me back to say considering the hole had doubled since seeing my Dr, she wanted me to go to the ER the next day. If I call for an appointment w/an ENT it would take a while to get in, where if I go to the ER they can get me in right away.

I received the same response from the ER Dr, even w/being adamant w/him that I’ve never used cocaine. He prescribed nasal spray & pain pills for the extreme pain in my face. Since it was now past 5 I was told they would call me the next day w/an appointment to see an ENT.

Next day I received the call they’d made an appointment. They gave me the date & time which was over a month away. I told the woman on the phone that w/as fast as this was growing I wouldn’t have a nose left in a month. She told me the ER Dr didn’t think it was urgent enough to require an earlier appointment.

Neither Dr so much as swabbed the area to see what is going on even w/clearly seeing the puss pockets & drainage. Today it is now almost the size of a dime w/constant drainage & puss pockets all around the area. (I‘m no Dr but, the presence of puss indicates an infection.) I don’t know what to do & I’m truly scared. What’s wrong w/me? Should I be scared? Please, please help me!

Jeana
 
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Hole in Nose. PLEASE, please help

Posted: Mar 30, 2008

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Replying to: Hole in Nose. PLEASE, please help

I am no Dr either, but I personally would try to get in somewhere else for a third opinion and see if they can do a culture on the discharge. I would not wait a month. Are you still on antibiotics?

Hole in Nose. PLEASE, please help

Posted: Mar 30, 2008

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Replying to: Hole in Nose. PLEASE, please help

Bottom line, Jeana? You need to use your assertiveness and get an earlier appointment. Ask your primary care provider to CALL the ENT personally, or call the ENTs office, get their fax number, and send a PERSONAL FAX directly to the ENT explaining your need for a sooner appointment.

Here is an article on Nasal SEPTUM perforations that you can read. Pay particular attention to the "Etiology" section...

http://www.emedicine.com/Ent/topic196.htm

Hole in Nose. PLEASE, please help

Posted: Mar 31, 2008

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Replying to: Hole in Nose. PLEASE, please help

Thank you for your response. As of this morning I have sent 4 faxes to 4 different ENT doctors. I have not gotten a response but am praying that I will in the morning. Just since posting my original post the hole has doubled, there is more puss and pain and I am running a fever. I would estimate that it is now larger then the size of a nickle.

Jeana


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Hole in Nose. PLEASE, please help

Posted: Apr 01, 2008

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Replying to: Hole in Nose. PLEASE, please help

You need to get your primary care doctor to help you....ONE PHONE CALL from your primary to the ENT should get you seen promptly. Hopefully, one of those faxes will hit home....

Hole in Nose. PLEASE, please help

Posted: Apr 01, 2008

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Replying to: Hole in Nose. PLEASE, please help

I received a call this morning and have an appointment for tommorrow afternoon. Thank god because as of today I am running a 104 fever and all I have to do is touch my nose and puss gushes out. Thank you so much for your advice. I never would have thought to send faxes. You cannot seem to get past the receptionists.

Jeana


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Hole in Nose. PLEASE, please help

Posted: Apr 01, 2008

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Replying to: Hole in Nose. PLEASE, please help

I have now shared a BIG SECRET about the medical community. Doctors have big hearts....it is just that you have to get past the receptionist to get to it!

Please let me know (by a new posting) how this visit turns out. Good luck.

Hole in Nose. PLEASE, please help

Posted: Apr 06, 2008

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Replying to: Hole in Nose. PLEASE, please help

Hi Jeana, I found your problem online coz I was research my husband's problem. He has the same problem as you now. He has the hole around the thickness of a pencil at June 07. Now, the hole is much bigger ; around 15 mm circle. He said that as big as it can get coz he felt the bone at the back of the hole already. He tried to see many doctors before and they all treated him like "drag" user, you know what I mean!! So he just monitor the hole every by himself. He has many bloody semi-dry mucus everyday and his nose will bleed a lot when he remove those mucus. So it make the hole bigger and bigger everyday. If he doesn't remove those dry mucus than he can breath, so he has to clean his nose min. twice a day. The hole and remove the mucus doesn't cause pain to him but no able to breath coz a lot of problem to him especially at night, he has to get up from the bed and clean it. We keep monitor it for months and we can't really do anything to it. All the doctors just not helping at all. So we research it by ourself when we have time and trying different ways to clean his nose. We don't want the hole bleed every time he clean it, maybe that will help the hole get smaller. Now, my husband doesn't scare anymore, coz he knows that no any doctor will really believe him and help him. He just has to be his own doctor and find new ways to treat the problem. He will not die, just has a big hole in his nose........I hope this will help you a little, you are not alone. Keep in ouch and email me if you want to know more. Take care.

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