chiari_katie
new! ductal excision
Posted: Apr 09, 2008
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I'm new to this board (new-ish to the boards in general), and am looking for help, advice, support or just someone to list.
In December of 2006, my gynecologist found a lump in my right breast (after I noticed white and clear discharge, both spontaneous and with manipulation) and sent me to a specialist. I had a biopsy done (mammotome), which indicated that it was an intraductal papilloma, but nothing especially abnormal (no hyperplasia or anything like that). I had a 1 month, 3 month, 6 month and more recently 1 year follow up. The doctor placed a small "clip" in my breast tissue to mark where it had been done, and at the 1, 3 and 6 month check ups that everything looked normal. They removed A LOT of tissue in the biopsy, so we had been watching the regrowth and change in the tissue.
At the 1 year check up, the tissue growth changed dramatically. It had regrown larger than it had been initially (in the 6 months between follow ups and I haven't been consuming caffeine since the biopsy), it was producing a lot more liquid than before and it just wasn't "normal." She decided that she wanted to wait and see for a few months before we did anything else. I went back yesterday for my follow up on the 1 year follow up. The ultrasound showed even more fluid, more tissue growth and really just no clear answers.
She spent a lot of time ultrasounding, squeezing and examining and decided that she needed to remove the duct. In less than 2 weeks. I was a little too stunned to ask any of the right questions (or rather, really any questions), so I'm wondering if anyone has had this done? How was the recovery? I'm a high school teacher, so my job is not usually physically demanding, though I will take time off, I just don't know what to anticipate. I hate narcotics and would rather avoid them if possible (I didn't take anything other than tylenol after the biopsy and only had one day of narcotics after a recent, unrelated, serious surgery). Is that going to be possible, or am I kidding myself?
I know am at a low risk of breast cancer because I'm only 25 and have limited family history (paternal grandmother is only case in family), but at the same time, the doctor believes that another biopsy won't be accurate due to scar tissue and I feel like I'd be remiss to not make sure that this is not something really serious. She told me that I didn't have to have the surgery, but in her opinion it was what needed to be done.
I'm meeting with the doctor again in a week (pre-op and question asking appointment). Are there any questions that I absolutely should ask or things I should consider (she's the best at this in the city, I've done a lot of research and have been with her for a year and a half)? I'm feeling very alone and very uninformed about what is sure to be a bigger deal than I'm anticipating.
I appreciate any help or suggestions or just anything. I have a lovely Fiance (whom I'm marrying in less than 2 months...eek and who is in medical school), but both of us are in a little over our heads with this.
Sorry it got so long and thanks to anyone who can help.
Katie
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Katie (24): Excisional Biopsy and Microdochectomy 4/22; Pathology due 4/29 Waiting waiting waiting....
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