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new! ductal excision

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About This Thread
Replies: 4
Last Post: May 2 2008 9:49 AM
Last Post By: tjplatz
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chiari_katie
new! ductal excision
Posted: Apr 09, 2008

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I'm new to this board (new-ish to the boards in general), and am looking for help, advice, support or just someone to list.

In December of 2006, my gynecologist found a lump in my right breast (after I noticed white and clear discharge, both spontaneous and with manipulation) and sent me to a specialist. I had a biopsy done (mammotome), which indicated that it was an intraductal papilloma, but nothing especially abnormal (no hyperplasia or anything like that). I had a 1 month, 3 month, 6 month and more recently 1 year follow up. The doctor placed a small "clip" in my breast tissue to mark where it had been done, and at the 1, 3 and 6 month check ups that everything looked normal. They removed A LOT of tissue in the biopsy, so we had been watching the regrowth and change in the tissue.

At the 1 year check up, the tissue growth changed dramatically. It had regrown larger than it had been initially (in the 6 months between follow ups and I haven't been consuming caffeine since the biopsy), it was producing a lot more liquid than before and it just wasn't "normal." She decided that she wanted to wait and see for a few months before we did anything else. I went back yesterday for my follow up on the 1 year follow up. The ultrasound showed even more fluid, more tissue growth and really just no clear answers.

She spent a lot of time ultrasounding, squeezing and examining and decided that she needed to remove the duct. In less than 2 weeks. I was a little too stunned to ask any of the right questions (or rather, really any questions), so I'm wondering if anyone has had this done? How was the recovery? I'm a high school teacher, so my job is not usually physically demanding, though I will take time off, I just don't know what to anticipate. I hate narcotics and would rather avoid them if possible (I didn't take anything other than tylenol after the biopsy and only had one day of narcotics after a recent, unrelated, serious surgery). Is that going to be possible, or am I kidding myself?

I know am at a low risk of breast cancer because I'm only 25 and have limited family history (paternal grandmother is only case in family), but at the same time, the doctor believes that another biopsy won't be accurate due to scar tissue and I feel like I'd be remiss to not make sure that this is not something really serious. She told me that I didn't have to have the surgery, but in her opinion it was what needed to be done.

I'm meeting with the doctor again in a week (pre-op and question asking appointment). Are there any questions that I absolutely should ask or things I should consider (she's the best at this in the city, I've done a lot of research and have been with her for a year and a half)? I'm feeling very alone and very uninformed about what is sure to be a bigger deal than I'm anticipating.

I appreciate any help or suggestions or just anything. I have a lovely Fiance (whom I'm marrying in less than 2 months...eek and who is in medical school), but both of us are in a little over our heads with this.

Sorry it got so long and thanks to anyone who can help.

Katie
 
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Katie (24): Excisional Biopsy and Microdochectomy 4/22; Pathology due 4/29 Waiting waiting waiting....

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new! ductal excision

Posted: Apr 09, 2008

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Replying to: new! ductal excision

Katie-

Welcome to our site. You may not get all the answers here but you will get lots of support so you don't feel alone.

I really can't comment on any of this because I'm unfamiliar with your situation but it sounds like a second opinion is in order. You should look for a breast specialist at a large teaching hospital (maybe one affiliated with your fiance's school if that isn't where you are right now). I live in Boston where there are many good hospitals and saw 3 surgeons before I settled on the one who did my surgery.

My best to you,

jennifer

new! ductal excision

Posted: Apr 09, 2008

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Replying to: new! ductal excision

Katie, I'd vote for having "this thing" removed. My reason is that my GP discovered a lump in my breast during one of my annual physical exams. I went for extra mammograms and ultrasounds while we "watched" this lump supposedly remain the same over 2 or 3 years. I cannot believe I agreed to that.

Finally one year ago, I told my doc I wanted the lump out no matter what it was. Well, after my mammogram, I was told I needed a biopsy because of possible malignancy. Well, the biopsy was positive and I went on to have a lumpectomy followed by radiation. When this lump turned cancerous, I don't know. I wish I'd had it out upon discovery though. You can bet if I have another lump, it's as good as gone. Lucy PS. I'm way over 25..........

Katie

Posted: Apr 10, 2008

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Replying to: new! ductal excision

I am so sorry you are facing this challenge, but want to assure you that this sight is filled with knowledgeable, caring folks who will do all they can to take your hand and guide you along the path.

Regarding information on breast cancer, there are many reputable sites for you to explore: American Cancer Society is but one. Just make sure you stay clear of internet snake oil salesmen! WebMD is also rich in information. For instance you asked about questions for your doctor so I went to their search box and found the following:

WebMD's 10 Important Questions to Ask Your Doctor About Breast Cancer Going to the doctor can be intimidating. You might feel rushed and forget to ask questions that are important. It?s always a good idea to know what to ask beforehand and to take notes when with the doctor. Some of the questions below may be worth asking. Print out this page and take it with you to your next appointment.

1. Specifically, what kind of breast cancer do I have, and what stage is it in?

2. How should I explain my condition to my spouse, family or friends? Are family members also at risk?

3. Do diet, exercise and other lifestyle issues affect my ability to recover from breast cancer?

4. What treatment options are appropriate for me and why?

5. Are there clinical trials in my area that may be helpful to me?

6. After I'm treated for breast cancer, what is my risk of getting other cancers?

7. How should I prepare for treatment?

8. What are the issues surrounding reconstructive surgery, and is it for everyone?

9. Will breast cancer treatment affect my sex life or my ability to have children?

10. Are there support groups for women with breast cancer in my area?

A couple of personal suggestions: Bring someone with you to all appointments. Two sets of ears are a real blessing!

Also, during this limbo period (which is a little like what Alice experienced in Wonderland: A new world filled with oddities and a totally different language...Multiple distortions!) don't forget to breathe! Sometimes we feel that if we can hold our breaths, everything will fall back into place. Far from the truth and doing so only exasperates the panic! So, frequently, breathe in and out, deeply and slowly! I think you will discover that this definitely helps to put things into a little more manageable perspective!

Please know that you will be in our thoughts, and do let us know how you are doing.

Blessings. Rachael


--
Just when the caterpillar thought her world was over... She became a butterfly! Don't give up five minutes before the miracle!

new! ductal excision

Posted: May 02, 2008

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Replying to: new! ductal excision

I understand how you feel. I just found out this morning that I also have papilloma, but mine is in my left breast, right underneath the nipple The radiologist suggested instead of doing the biopsy, to go in & have it surgically removed. This way, they get a good picture of if it is malignant or not and there is no messing around. The good news is that there is no history in my family of any cancer, so this is the positive news.

There is no discharge in mine. So, I would suggest just get it removed. It doesn't belong there, & why take chances. Life is too precious.

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